Wow! It’s certainly been quite some time since my last post on here. So, here’s what has happened since then. In January this year (2016), I had a trial surgery for a spinal chord stimulator (SCS). This was done to see if a permanent SCS implant would be of any benefit. In this trial, I had 2 leads inserted and placed at C2 and another 2 leads inserted and placed at T8. The trial went for 10 days where I was limited as to what I could do movement wise. This included no driving.
Yes, I’m still here….. I haven’t written anything since November last year, not because I wouldn’t have have much to write, but because I haven’t been inspired to write anything. You see, I feel that my life since then has been quite, boring.
Well, at least that what the pain management specialist said to me on Monday. Yes, it is a possibility that in the not too distant future that I could be pain free, or at the least be able to reduce the need to take the narcotic drugs that I currently need to get me through my worst days.
THE SPIRIT OF HALLOWEEN
BY JOHANNA MICHAELSEN
Last Halloween when the doorbell rang, I was greeted by an adorable bunch of little kids doing their level best to look like gruesome witches and vampires. I bent down as I distributed apples and oranges in response to lusty cries of “trick or treat!”
“You kids want to know something?” I asked very softly.
How do I fill in my days? This is a question that people often ask me. Most of the time I just say that I spend a lot of it lying on the lounge or in my recliner watching TV. Which, isn’t far from the truth.
I never look forward to Mondays, or Sunday nights for that matter. Not because it’s the start of the new week. Or for the fact that Michelle and the girls will be at work and school during the day, leaving me at home alone.
But because late Sunday night I go through withdrawals, as I come off the narcotic drug which I have needed to be on for the weekend or sometimes just for Sunday. A drug, just so that I can bear the increased pain of sitting, standing and walking as a result of going to church, the wanting to be social and trying to have a ‘normal’ life/weekend like everyone else.
Firstly, a big thank you to everyone who has taken the time to stop by and read my blog. I started writing about my journey dealing with Degenerative Disc Disease (DDD) back in late November 2012. Mostly to help me deal with the changes that this has placed both on my life and my family’s lives. But also as an inspiration to those of you who struggle with chronic pain, or anything else for that matter.
If you would like to have a better understanding of my journey, how it has changed me and what I have to deal with each and every day. Then please, read all my posts in chronological order from where it all started – Everything Crashes Around Me
A relaxing family holiday, camping in our caravan for 8 nights with my parents and at times most of our extended family. No internet, no mobile phone reception and no TV (unless you have satellite or went up to the camp kitchen to watch it). This is Kilkivan Bush Camping!
It saddens me today as I read and listened to Christopher Wayne’s reasoning as to why he no longer believes in God. Though he still says that there must be a ‘god or ‘intelligent being’. But says that God, our God who created the heavens and the earth, cannot be a loving God if He allows there to be pain and suffering in this world. (You can listen to an interview that he did with Katrina Davidson on 612ABC radio here.)
Well, I can’t believe that it has been more than a year since my last post. Lots has happened since then. My DDD (Degenerative Disc Disease) has worsened and as a result a change in medications has been required. I am now on the maximum dosage of Lyrica per day and with that, mainly on weekends, I need also need prescribed narcotic drugs to get me by. But all in all, I am coping reasonably well most days. Though I have those days/nights when I just wish there was a quick fix and I could be rid of this constant pain for good……but, there isn’t one